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ACGT Newsletter

View Summer 2010 Issue

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  • medical professionals
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Kids

Links

  • -> Societies, Associations, Unions relevant for childhood cancer
  • -> Childhood Cancer Diseases
  • -> Psychological Aspects
  • -> Childhood Parents Group
  • -> Forum / Chat



Societies, Associations, Unions relevant for childhood cancer

Worldwide

  • International Union against cancer

    UICC
    The "International Union Against Cancer" (UICC) is the only international non-governmental organization dedicated exclusively to the global control of cancer. Its vision is of a world where cancer is eliminated as a major life-threatening disease for future generations.

  • Multinational Association of supportive care in cancer

    MAASC
    Association build of healthcare professionals. Education and Information on supportive care for patients regardless their cancer

  • Outlook -- Life beyond childhood cancer

    Outlook
    The Outlook Web Site was developed in order to provide an innovative and unique resource that addresses the issues of childhood cancer survivors, provides information and support to families and professionals and to build a bridge of support between current patients and survivors.

  • American Cancer Society

    American cancer society
    Information provided for Patients, Family, & Friends Survivors, Healthcare Professionals and volunteers.

  • National Cancer Institute

    NCI
    The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Europe

  • Société Internationale d'Oncologie Pédiatrique

    SIOP
    The "Société Internationale d'Oncologie Pédiatrique" is the major global organisation concerned with the issues of children and young people who have cancer. For the past 35 years it has brought together doctors of many different disciplines to develop better care for this disease.

  • Union of National Europe an Paediatric Societies and Associations

    UNEPSA
    General Healthcare organisation with the aim to encourage cooperation between national paediatric societies in their task to promote child health, to stimulate research and collaborate with the International Paediatric Society
    (IPA)

  • Europe an Society for Paediatric Haematology and Immunology

    ESPHI
    It is the society's purpose to foster scientific research in the field of pediatric hematology and immunology, and to promote the exchange of views and information among scientific researchers in this field, with particular emphasis on the contributions of young scientists.

United Kingdom

  • Children Cancer and Leukaemia group

    CCLG
    The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group's main remit is the coordination of national and international clinical trials, including biological studies

  • Childhood Cancer research group

    CCRG
    Homepage of the childhood cancer research group that is responsible for the national cancer registry in the UK. It fulfils the basic public health functions of a cancer registry through description and analyses of trends and distributions of cancer incidence, mortality and survival, and to distribute NRCT data to potential users

France

  • Société française de pédiatrie

    SFP
    The "Société Française de pédiatrie" provides a platform for physicians, patients and parents in France. It offers information and links regarding childhood cancer. Website is in French Language available only.

Germany

  • Gesellschaft fur Padiatrische Onkologie und Hamatologie

    GPOH
    The German organisation has the objective to optimize therapy, secure quality management in treatment and diagnosis. There are useful information on different kinds of cancer and treatment.

  • Deutsches Kinderkrebsregister

    DKKR (CCR)
    The German Childhood Cancer Registry is the largest childhood cancer registry worldwide.

  • Deutsche Krebsgesellschaft

    DKG
    The "Deutsche Krebsgesellschaft e.V." is the biggest respective organisation for oncology in Germany which deals with all types of tumours -- adult and childhood. Main topics of engagement are prevention, early diagnosis and research.

Ireland

  • Irish Cancer Society

    Irish Cancer Society
    The Irish Cancer Society is the national charity dedicated to preventing cancer, saving lives from cancer and improving the quality of life of those living with cancer through patient care, research and education.

Italy

  • Federazione Italiana Associazioni Genitori Oncoematologia Pediatrica

    FIAGOP
    Homepage of the italian childrens cancer organisation. Website available in Italian Language only.

Netherlands

  • Nederlandse Vereniging voor Kindergeneesungskunde

    NVK
    Aims of the NVK are quality control, education, care of needs and interests of patients and relatives and scientific research in childhood cancer.

Turkey

  • Foundation of children with Leukaemia

    LOSEV
    LOSEV is a non-profit NGO, mainly aiming to provide educational and emotional supports, financial assistance and health services for the children who have Leukaemia or chronic blood disorders, to help them cope with their illness that threatens their life.

United States of America

  • Children's oncology group

    COG
    America's most important children's oncology organisation. The aim is to cure and prevent childhood and adolescent cancer through scientific discovery and compassionated care.

  • Cure for kids

    Cure 4 kids
    Cure4Kids is a Web site dedicated to medical education for physicians, nurses, scientists and health care workers who treat children with catastrophic diseases. Established as part of the St. Jude International Outreach Program, the Cure4Kids site provides crucial tools to doctors and nurses around the world.

To top



Childhood Cancer -- Diseases


Germany

  • Kinderkrebsinfo

    Kinderkrebsinfo
    Information portal on malignant diseases and diseases of the blood in children and young adultsfor children, young adults, families, students, physicians, scientists, other health professionals, the public and all those who are affected or interested

United Kingdom

  • Cancer Research UK

    Cancer research UK
    The 'children's cancers' section - questions and answers- has information about some types of childhood cancers and their treatment.

France

  • ACCIS

    ACCIS
    A source for data on incidence and survival of children and adolescents with cancer

United States of America

  • Cancer Oncology group

    COG
    The website provides an overview of the most common types of childhood cancer.

To top



Psychological Aspects


Germany

  • Deutsche Arbeitsgemeinschaft für psychologische Onkologie e.V.

    Dapo e.V.
    Interdisciplinary Consortium of specialist's who are involved in the treatment of patients with cancer.

  • Krebsinformationsdienst

    KID
    Links to regional support groups in Germany

To top



Childhood Parents Group International


  • International Confederation of Cancer Childhood Parents Organisation

    ICCCPO
    The aim is to share information and experience in order to improve access to the best possible care for children with cancer everywhere in the world. It is an international network through which its member parent organizations may share information to build better links between parents and health care professionals

  • Outlook -- Life beyond childhood cancer

    Outlook
    The Outlook Web Site was developed in order to provide an innovative and unique resource that addresses the issues of childhood cancer survivors, provides information and support to families and professionals and to build a bridge of support between current patients and survivors.

  • Paediatric Oncology Resource Centre

    Paediatric Oncology Resource Centre
    This resource centre was created by and for people who know young people who are recovering from cancer. Most of the contributors to this site are members of the ACOR paediatric cancer mailing lists, especially ped-onc, ped-onc-survivors, and ALL-kids.

  • Families of Children with Cancer Organization

    Families of Children with Cancer Organization
    "Families of Children with Cancer Organization" is run by volunteers who are devoted to education, support, and advocacy for families living with the effects of childhood cancer. They serve families who are in treatment, off treatment, or bereaved.
Countries in alphabetical order:

Austria

  • KinderkrebshilfeOsterreich

    Kinderkrebshilfe Osterreich
    The "Kinderkrebshilfe Osterreich"represents the interests of children with cancer and their relatives and exerts itself for her needs in the whole sphere. The Organisation provides straight information, promotes, supports and stimulates projects which correspond to these needs.

Czech Republic

  • Haematology and Oncology Children Patient's Parents and Friends Association

    Sdruzeni Sance
    Is a voluntary organization, associating its individual members without making difference of their nationality, religion, occupation or social status, and legal entity that have the desire to provide active help to haematology and oncology children patients.

Denmark

  • Familier Med Kraeftramte Boern

    FMKB
    No English webpage available.

Finland

  • SYLVA

    SYLVA
    SYLVANA is a Finnish organization that brings together families of children with cancer as well as health care professionals. It operates nationwide, and has about 1,700 members in different parts of Finland.

France

  • L'Union Nationale des Associations de Parents d'Enfants Cancéreux ou Leucémiques

    UNAPECLE
    Parent`s organisation in France. Website in french language.

  • L'Envol

    L'Envol
    Organization that cares about children have chronic illnesses that often confine and limit them for the most part, in an attentive (the hospital), and warm (their families) world. Twelve days spent at the Echouboulains and this adventure lets them live with their illness with more courage, by building confidence in their bodies, their future and towards others.

Germany

  • Deutsche Kinderkrebsstiftung

    Kinderkrebsstiftung
    The endowment has the purpose to improve outcome, treatment and the quality of life of children suffering from cancer. The endowment provides Clarification, consultation and information, advice and financial help if necessary.

Greece

  • Greek Parents Association of Children with cancer

    FLOGA
    Only Email address that links to the responsible of the Greek parents group that exists for 24 years.

  • Greek Parents Association of Children with cancer

    IASO
    No English webpage available

Hungary

  • Europai Tamogatasi

    Egyesulet A Rakos Gyermekekert
    Kecskemet
    The objectives of the page are advanced training measures and arrangements of information for the improvement of the fight against cancer, for cancer research.

Iceland

  • Styrktarfelag Krabbameinssjukra Barna

    SKB
    SKB provides support, information and advocacy to families af children with cancer, survivors of childhood cancer and the professionals who work with them.

Ireland

  • CanTeen Ireland

    CanTeen Ireland
    CanTeen Ireland is a nation-wide support group for young people who have or have had cancer"

  • The Barretstown Gang Camp

    The Barretstown Gang Camp
    Barretstown provides challenging activity-based programmes for children affected by cancer and other serious illness and their families

  • Cancer Plus

    Irishhealth
    Cancer Plus (Part of Irish cancer society) Cancer Plus is a support group for the parents of a child who has been diagnosed with cancer. All members of Cancer Plus have had children diagnosed with cancer. Who better to provide support, guidance and reassurance to other parents about what to expect!

Italy

  • Comitato Maria Letizia Verga

    Comitato Maria Letizia Verga
    No English webpage available

  • Associazione Bianca Garavvaglia

    Associazione Bianca Garavaglia
    No English webpage available

Japan

  • Children's Cancer Association of Japan

    CCIJ-Found
    Children's Cancer Association of Japan (CCAJ) is the only non-profit organization in Japan to support children with cancer and their families. CCAJ is involved in many activities to offer emotional and financial support.

  • Asian Children's Care League

    ACCL
    ACCL is committed to work with the society, professionals, and patients / survivors as well as their families to improve public awareness and services for Asian children in need

Luxembourg

  • Een Haerz fir kriibskrank Kanner

    Een Haerz fir kriibskrank Kanner
    Homepage of the parent's imitative of Luxembourg. Currently under construction but provides information and addressee of the responsible.

Netherlands

  • Vereniging ,Ouders, Kinderen en Kanker

    VOKK
    The VOKKprovides support, information and advocacy for parents and families. Parents, grandparents and guardians of (cured and deceased) children with cancer, siblings and long term survivors of childhood cancer can become members of VOKK. Professionals and others can become associate members.

Norway

  • Stotteforeningen for Kerftsyke Barn

    SKB
    Consortium of parent's volunteers giving advice, help and information for patients and their families in Norway. Links to regional volunteers can be found.

Portugal

  • Associaçao Acreditar

    Acreditar
    The association provides advice and help for patients with cancer and their families in Portugal. Links and contacts to responsible people in Portugal

Romania

  • Association P.A.V.E.L.

    PAVEL
    PAVEL approaches the issue of children with cancer

Spain

  • Federacion Espanola de Padres del Ninos con Cancer

    F.E.P.N.C.
    Information about childhood cancer and advice for patients and families.Links to regional supporting groups in Spain. Website in Spanish Language available only.

Sweden

  • Barncancerfonden

    Barncancerfonden
    The association with regional supporting groups providesinformation, advice and help to patients and their families. General information about childhood cancer can also be found.

Switzerland

  • Kinderkrebshilfe Schweiz

    Kinderkrebshilfe Schweiz
    For 20 years the "Kinderkrebshilfe Schweiz" exerts themselves for the interests and needs of children suffering from cancer and their families in Switzerland. With the information exchange and exchange of experience among "like-minded people" they perform an important contribution to the recovery and to the alleviation of the situation of children with cancer.

Turkey

  • Foundation of children with Leucaemia

    LOSEV
    LOSEV is a non-profit NGO, mainly aiming to provide educational and emotional supports, financial assistance and health services for the children who have cancer.

Ukraine

  • Mercy Mission "Overcoming"

    Mercy Mission "Overcoming"
    The childhood parents group in the Ukraine provides information, help and advice for children with cancer and their families.

United Kingdom

  • National Alliance of Childhood Cancer Parent Organisations

    NACCPO
    Organisations run by parents with common aims of working together to support children with cancer. One of its aims is to offer support and information to families who are not members of a support group and who may be experiencing difficulties associated with having a child undergoing cancer treatment.


  • United Kingdom Children's Cancer Study Group

    United Kingdom Children's Cancer Study Group
    The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group's main remit is the coordination of national and international clinical trials and a paediatric tissue bank. Other areas of activity include national cancer registration and provision of information for patients and families.

  • CLIC Sargent

    CLIC Sargent
    UK's leading children's cancer charity. CLIC Sargent offers children with cancer all round care and support during treatment, in hospital, at home and after treatment.

United States

  • Candlelighters Childhood Cancer Foundation

    Candlelighters America
    Candlelighters Canada
    The mission is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so that every child can live a long and healthy life.

  • National cancer childhood foundation

    Cure search
    Cure Search unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through a mission to cure childhood cancer. Research is the key to the cure.

  • Children's Oncology Camping Association International

    Children's Oncology Camping Association International
    Children's Oncology Camping Association International is an international assembly of people providing camping programs for children with cancer. Currently this association is only working in the United States and Canada.

  • Forum/chat


    • Onkokids

      Onkokids
      German forum for children with cancer, their families and friends

    • Oncochat

      Oncochat
      IRC (Internet Relay Chat) is a virtual meeting place where people from all over the world can meet and talk. Oncochat is dedicated to patients with cancer, their relatives and friends.

    • Cancer Survivors

      Cancer Survivors
      IRC (Internet Relay Chat) is a virtual meeting place where people from all over the world can meet and talk. Cancer Survivors is a forum/ chat where patients and families can exchange information, their thoughts and fears.
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